Wow! I can't believe its getting closer. One trait that I'm happy to have but is pretty much infuriating to everyone around me is I tend to have unexplained confidence that I can do something even if there is no evidence that I'm capable of it. I don't sweat it, I just power forward with all my might and get it done. I'm training for the marathon but I have no worries about not finishing. I know I will give it all I've got; that's just what I do.
My tendonitis in my ankle and bone spurs are acting up so I'm trying to be wise but man I really just want to go out tomorrow and run 26.2 just to prove I can do it. Can I yet, probably not; but that rarely stops me. I'm not the most mature person. I'm not the most wise person. But I'm a pretty determined person and with age, fairly responsible and I am aware of my limitation to the point that I don't want to screw up my chances of participating in the marathon by being stupid now. Plus if there is one thing Simon has taught me, it is slow and steady wins the race. Patience, grace and quiet dignity will never be part of my personality but I try to fake it sometimes.
With every passing day I get more and more excited to have this accomplishment behind me and say, yeah, that's me, I did that!
Wednesday, February 8, 2012
Friday, February 3, 2012
The Good, the Bad and the Yipee!
So our year started out with a lot of tests and appointments, what's new right? Simon had a follow-up sleep study and EEG. The sleep study proved to be great news, he has some quirks but all in all a good study. Now his ability to go to sleep and stay to sleep has been a problem, well, forever; so we have started him on a more aggresive sleep aid. He is going to sleep better, staying asleep is still questionable but we're only a few days in.
Official seizure diagnosis, Atypical Absence Epilepsy. That's another name for Simon doesn't like to do things the expected way. His seizures are longer and have a few quirks different from what a typical petit mal seizure looks like. Generally they last 10 seconds or less, Simon's last anywhere from typical to well over a minute. His longest, as people who know us may remember, was about 12 horrifying minutes. His medication has been increased and we're seeing some improvement, still kind of watching right now.
The yipee?! NO MORE OXYGEN! The equipment is being returned today!
What is funny about going to sleep at a good time and no more oxygen is my weird reaction. Its funny how used to being tense you are that you just don't know how to relax. I've wanted that oxygen gone for so long and now that its leaving I feel a little apprehensive, as if we're not prepared. We have lived Simon's life with so many surprises I've really become someone who has tried to outthink his body and be ahead of the game. Dare I relax? Everytime I have something has blindsided us from behind and to the left LOL, but you know what; I'm going to give it a shot. I gave up as much control as I could muster to our Heavenly Father a long time ago, I think he gets that I have a hard time letting go of the control; so I hope he gives me some kudos for at least trying to be grateful and relax a little.
Official seizure diagnosis, Atypical Absence Epilepsy. That's another name for Simon doesn't like to do things the expected way. His seizures are longer and have a few quirks different from what a typical petit mal seizure looks like. Generally they last 10 seconds or less, Simon's last anywhere from typical to well over a minute. His longest, as people who know us may remember, was about 12 horrifying minutes. His medication has been increased and we're seeing some improvement, still kind of watching right now.
The yipee?! NO MORE OXYGEN! The equipment is being returned today!
What is funny about going to sleep at a good time and no more oxygen is my weird reaction. Its funny how used to being tense you are that you just don't know how to relax. I've wanted that oxygen gone for so long and now that its leaving I feel a little apprehensive, as if we're not prepared. We have lived Simon's life with so many surprises I've really become someone who has tried to outthink his body and be ahead of the game. Dare I relax? Everytime I have something has blindsided us from behind and to the left LOL, but you know what; I'm going to give it a shot. I gave up as much control as I could muster to our Heavenly Father a long time ago, I think he gets that I have a hard time letting go of the control; so I hope he gives me some kudos for at least trying to be grateful and relax a little.
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