Wednesday, December 21, 2011

MERRY CHRISTMAS!

Yep, it's Christmas time.  I'm starting to feel it a bit, but its tough to enjoy this time of the year when you know that starting the first of next year a Simon marathon will begin.  We're hoping for answers, solutions, something but along this journey I think we've learned to not hold our breath.  He's a quirky little guy and his body works a little different, it is what it is.  But alas we have to try, we never stop trying to give him every tool possible to help him be the best he can be and be in the best health he can be. 

Christmas presents for him have taken a different approach from us this year.  He's getting the fun stuff from grand parents, from us he's getting a cool dinosaur humidifier.  Still very kid cool but also practical.  Sometimes I think we try so hard to treat our SN kids like everyone else that we miss the mark a little bit of accepting them as they are and embracing what some of those differences are.  He could care less about most toys.  A humidifier will be a big boost to his oxygen challenges, i.e. keeping his nose from getting irritated from the cannuals.  I think treating him like a kid is great, but I think its also important to remember to accept him just as he is and if he would love a card for Christmas, then get him a card, why spend $50 on a toy he won't play with?  We're all different, different things bring us pleasure so if we want to be honest the stress we have over how much we spend on someone when instead a truly thoughtful gift would do the job and bring you and the person receiving the gift from you; why strive for anything else? 

Those are my random thoughts.  Take them for what you will. Merry Christmas!